Mission
The National PKU Alliance (NPKUA) is dedicated to enhancing the lives of individuals and families affected by Phenylketonuria (PKU), a rare metabolic disorder. Founded in 2008, NPKUA aims to be the principal resource for anyone impacted by PKU through education, support, and research advocacy. The organization conducts various initiatives including community-building events, facilitation of clinical research, and legislative advocacy to ensure access to necessary treatment and support for PKU individuals across their life stages.
Basic Information
Tax-Exempt
Founded in
2008
EIN
26-2849140
Total Assets
$4.757 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Showing 3 of 3 goals
At a Glance
Lifting the Limits for PKU
Join regional fundraising events aimed at supporting PKU research.
Advocacy for Medical Nutrition Equity
Engaging the community to lobby for essential medical coverage.
NPKUA Conference
Attend the largest gathering for the PKU community to share and learn.
Impact Stats
$4.4 million
Total Amount Raised
Lifting the Limits Fundraising
Organized over 10 Lifting the Limits events raising significant funds for PKU research.
Data collected from hundreds of participants
Number of Registrants
Patient Registry Launch
Launched the PKU Patient Registry to accelerate research and gather community data.
$5 million
Total Research Grant Funding
Research Grants
Provided over $5 million in research grants to advance PKU studies.
Impact Reports
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
64
50
/100
Program Expense Ratio
54.80%
4
/20
Program Revenue Growth
-69.99%
2
/20
Leverage Ratio
0.03369
20
/20
Working Capital Ratio
2.452
16
/20
Fundraising Efficiency
2.37
8
/20
Latest Filing Data: Form 990
Fiscal Year:2023
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 1.513M | 115.89% |
| Program Services | 13.5K | 1.03% |
| Investment Income | 103.9K | 7.95% |
| Sales of Non-Inventory Assets | 39.6K | 3.03% |
| Other Notable Sources | 5K | 0.38% |
| Total Revenue | 1.306M | 100.00% |
Related Nonprofits
National Pku Alliance Inc.
Med Research
Down Syndrome Research
D S R F Down Syndrome Research Foundation
Med Research
Down Syndrome ResearchDown Syndrome Innovations Inc.
Med Research
Down Syndrome ResearchKennedy Willis Center on Down Syndrome Inc.
Med Research
Down Syndrome ResearchBriarcliff Business Partner Alliance
Med Research
Down Syndrome Research