Mission
The Amyloidosis Foundation is dedicated to improving the diagnosis and treatment of amyloidosis, a rare and often misdiagnosed disease caused by the deposition of amyloid proteins in various organs. The foundation focuses on increasing awareness, providing patient resources, funding research, and supporting medical education to advance the understanding and management of amyloidosis.
Basic Information
Tax-Exempt
Founded in
2003
EIN
20-0291856
Total Assets
$1.056 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Showing 3 of 3 goals
At a Glance
AL Amyloidosis Overview
Information on AL amyloidosis including symptoms, diagnosis, and treatment options.
Upcoming Events
Stay informed about our events, including webinars and conferences.
Patient Stories
Real stories from patients affected by amyloidosis, showcasing their journeys.
Impact Stats
30
Number of Grants Awarded
Research Grants
Annual grants for junior research scientists working on amyloidosis.
3
Number of Approved Drugs
Established Treatment Options
Support for the development of several drugs approved for treating ATTR amyloidosis.
15
Number of Webinars
Patient Education Programs
Hosted multiple webinars and informational sessions tailored to educate patients and caregivers.
Past Events
Emerging Treatments for AL Amyloidosis
2024-10-15
Webinar on Emerging Treatment Options for Amyloidosis
Annual Patient Support Group Meeting
2024-06-30
Patient gathering to discuss experiences and resources.
Amyloidosis Research Symposium
2024-05-17
Conference focused on new research breakthroughs.
Upcoming Events
Webinar: Understanding Neuropathy
2024-11-20
Join us for an informative session on managing neuropathy related to amyloidosis.
Learn MoreWebinar: Grace vs. Forgiveness
2024-12-04
A reflective session on coping strategies for patients and families.
Learn MoreOur Programs
Research Grants Program
Provides funding to researchers focusing on amyloidosis to foster innovative treatments.
Learn MorePatient Resource Education
Educational materials and webinars designed to empower patients and families.
Learn MoreAwareness Campaigns
Initiatives to raise public awareness about amyloidosis and its effects.
Learn MoreVolunteer Opportunities
Event Support Volunteer
Assist in the organization and execution of foundation events.
Patient Outreach Volunteer
Connect with patients to provide support and information.
Testimonials
"There is no greater reminder that we should cherish moments than nearly dying. My experience with amyloidosis taught me the importance of hope and resilience."
Lou Catania
"Being involved with the Amyloidosis Foundation has allowed me to make a difference in the lives of so many patients and their families."
Patient Advocate
Volunteer
"The support from the Amyloidosis Foundation has been instrumental in advancing critical research that can lead to life-saving treatments."
Researcher Partner
Research Collaborator
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
63
54
/100
Program Expense Ratio
84.37%
16
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.02026
20
/20
Working Capital Ratio
1.73
14
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 606.8K | 85.41% |
| Program Services | 0 | 0.00% |
| Investment Income | 14.42K | 2.03% |
| Sales of Non-Inventory Assets | -5.583K | -0.79% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 710.4K | 100.00% |
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