Mission
The Valeria Association works to bridge the gap between research and treatment of orphan diseases through unprecedented individualized therapies. They support research projects and educate the public to foster collaborations that promote and accelerate the adoption of novel therapies for orphan genetic diseases.
Basic Information
Founded in
2020
EIN
86-1907445
Total Assets
$441.4 thousand
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance
Participation in Falmouth Road Race
Team Valeria participates annually in the Falmouth Road Race to raise funds and awareness for orphan diseases.
Partnership with N=1 Collaborative
Collaboration aimed at advancing personalized treatments for children with orphan diseases.
Research on KCNT1 Gene Mutation
Exploration into the KCNT1 gene mutation's impact and potential treatments.
Impact Stats
Treatment Success Cases
Development of Valeriasen
An antisense oligonucleotide treatment developed in response to Valeria's KCNT1 mutation.
Past Events
Falmouth Road Race 2023
03/10/2023
Team Valeria participated in the Falmouth Road Race, raising funds and awareness.
Upcoming Events
Falmouth Road Race 2024
08/18/2024
Valeria Foundation participates in the Falmouth Road Race to gather community support and funds.
Learn MoreOur Programs
Research on Gene Treatments
Developing treatments for orphan diseases through research collaborations.
Learn MoreVolunteer Opportunities
Testimonials
"Valeria's journey has shown the necessity of advancing treatments for orphan diseases like never before."
Alexandra Schenkel
Board Member
Impact Reports
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
48
28
/100
Program Expense Ratio
100.00%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
22.32
2
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2021
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 506.6K | 100.00% |
| Program Services | 0 | 0.00% |
| Investment Income | 0 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 506.6K | 100.00% |
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