Mission
The National Fragile X Foundation empowers families affected by Fragile X syndrome through community support, education, and research. They provide resources for families to help navigate the challenges of living with Fragile X while advocating for patients' needs. Their ongoing efforts focus on advancing research and improving treatments for individuals with Fragile X-related conditions.
Basic Information
Founded in
2001
EIN
84-0960471
Total Assets
$2.775 million
At a Glance
Webinar: Navigating Challenging Behaviors
Join a panel discussion about navigating challenging behaviors in children with Fragile X.
Virtual Friendsgiving Celebration
Celebrate Friendsgiving with the Sibling and Self-Advocate Network virtually and participate in fun activities.
Advocacy Day 2025
Join families, caregivers, and advocates for the NFXF Advocacy Day to support the Fragile X community.
Upcoming Events
NFXF Webinar Series: Navigating Challenging Behaviors 2024
2024-11-20T19:00:00Z
Join a panel discussion with experts as they discuss how to navigate challenging behaviors.
Learn MoreVirtual – SSAN Friendsgiving Celebration
2024-11-23T14:00:00Z
Join us for a Thanksgiving celebration with games and fun activities.
Learn More
NFXF Webinar Series: Gene Therapy & the FXS Community
2024-12-16T13:00:00Z
Discussion about community surveys on gene therapy for the Fragile X syndrome.
Learn MoreNFXF Advocacy Day 2025
2025-02-24T00:00:00Z
Annual event gathering families, self-advocates, and researchers to discuss and advocate for the Fragile X community.
Learn MoreOur Programs
NFXF Research Readiness Program
Facilitates research activities to advance knowledge about Fragile X syndrome.
Learn MoreNFXF International Conference
A multi-day event showcasing the latest in research and support for Fragile X.
Learn MoreMyFXResearch Portal
Connects families with researchers for improved participation in studies.
Learn MoreImpact Reports
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
68
66
/100
Program Expense Ratio
81.41%
14
/20
Program Revenue Growth
162.69%
20
/20
Leverage Ratio
0.1097
18
/20
Working Capital Ratio
1.181
12
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 2.563M | 79.08% |
| Program Services | 665.9K | 20.55% |
| Investment Income | 1.762K | 0.05% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 3.241M | 100.00% |
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