Mission
The Pulmonary Fibrosis Foundation (PFF) is the largest nonprofit organization dedicated to funding research and advocating for important issues for the PF community. The PFF provides resources for individuals and families affected by pulmonary fibrosis, including support groups, educational materials, and a registry for research participation.
Basic Information
Founded in
2000
EIN
84-1558631
Total Assets
$16.79 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance
PFF Help Center
The PFF Help Center provides patients, caregivers, and health care providers with up-to-date medical information and support services.
Patient Support Group Meetings
Support groups offering sharing of experiences and encouragement for patients and caregivers.
PFF Advocacy Efforts
Advocacy efforts to improve access to supplemental oxygen for pulmonary fibrosis patients.
Impact Stats
Number of enrolled patients
PFF Community Registry
A distinctive database that follows the care of patients with interstitial lung diseases including idiopathic pulmonary fibrosis.
Amounts funded
Funding for Research
Secured funding for patient-oriented PF research and training of early-career investigators.
Past Events
Monthly Support Group
2023-09-17
Monthly support group discussions for patients and caregivers.
Pulmonary Fibrosis Awareness Month
2023-09-01
Annual awareness month activities to engage the community.
Upcoming Events
PFF Education Symposium
2025-06-12
Educational event focused on pulmonary fibrosis awareness and research.
Learn MoreOur Programs
PFF Community Registry
A registry collecting data from patients and families to support research.
Learn More
PFF Care Center Network
A network of medical centers providing specialized care for pulmonary fibrosis.
Learn More
Volunteer Opportunities
Lead a Support Group
Become a facilitator for our support groups to help others in the PF community.
Learn More
Join the PFF Community Registry
Volunteer to provide essential data that will inform research on pulmonary fibrosis.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
73
66
/100
Program Expense Ratio
74.71%
10
/20
Program Revenue Growth
53.04%
20
/20
Leverage Ratio
0.3012
12
/20
Working Capital Ratio
1.135
12
/20
Fundraising Efficiency
1.031
12
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 8.462M | 71.62% |
| Program Services | 3.896M | 32.97% |
| Investment Income | 414.7K | 3.51% |
| Sales of Non-Inventory Assets | 5.134K | 0.04% |
| Other Notable Sources | 500 | 0.00% |
| Total Revenue | 11.82M | 100.00% |
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