Mission
The PCD Foundation is a 501(c)(3) patient advocacy organization dedicated to serving individuals affected by Primary Ciliary Dyskinesia (PCD). Founded by a parent and a patient, the foundation aims to address unmet needs in the PCD community, including improving diagnostics, treatment accessibility, and generating research. The foundation collaborates with various partners to create a clinical center network and to further research on inherited ciliary disorders.
Basic Information
Tax-Exempt
Founded in
2004
EIN
20-0543474
Total Assets
$3.346 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Showing 3 of 3 goals
At a Glance
PCD Clinical Center Network
The PCD Foundation has established a network of clinical centers aimed at improving diagnostic capabilities and treatment accessibility for individuals with PCD.
PCDF Registry
The foundation is developing a registry to collect data on PCD, facilitating research and improving patient care.
Annual Scientific Conference
The 'PCD on the Move' conference gathers PCD experts to share the latest research and developments.
Upcoming Events
An Evening to Ignite the Future
November 8, 2024
A gathering to highlight future plans for individuals with PCD and honor the impact of the PCD community.
Learn MoreOur Programs
PCD Registry
A registry to collect clinical data on PCD to support research and improve patient outcomes.
Learn MoreClinical Center Network
A network aimed at providing high-quality diagnostic and treatment options for individuals with PCD.
Learn MoreVolunteer Opportunities
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
58
50
/100
Program Expense Ratio
76.01%
10
/20
Program Revenue Growth
-0.45%
2
/20
Leverage Ratio
0.09469
20
/20
Working Capital Ratio
3.662
16
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 1.094M | 98.65% |
| Program Services | 10.01K | 0.90% |
| Investment Income | 5.86K | 0.53% |
| Sales of Non-Inventory Assets | -884 | -0.08% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 1.109M | 100.00% |
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