Mission
Usher 1F Collaborative is a patient-led research network that works to find a cure for and raise awareness of Usher 1F syndrome, which causes profound deafness at birth and progressive vision loss. Founded in 2013 by the Chaikof family, who have two children affected by the syndrome, the organization unites families globally to support research efforts aimed at finding effective treatments.
Basic Information
Founded in
2013
EIN
46-4309387
Total Assets
$1.3 million
At a Glance

Our Story
The story of how the Usher 1F Collaborative was founded by families affected by Usher syndrome, driven by the need to find a cure.

Advancing Research
Investing in research to find treatments for Usher syndrome at an accelerated pace.

Community Impact
Connecting families affected by Usher syndrome across the globe for support and advocacy.
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
54
48
/100
Program Expense Ratio
78.88%
12
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.004091
20
/20
Working Capital Ratio
1.388
12
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
Category | Amount | Percentage |
---|---|---|
Contributions, Gifts, and Grants | 1.082M | 99.89% |
Program Services | 0 | 0.00% |
Investment Income | 0 | 0.00% |
Sales of Non-Inventory Assets | 0 | 0.00% |
Other Notable Sources | 1.187K | 0.11% |
Total Revenue | 1.083M | 100.00% |
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