Riaan Research Initiative is dedicated to promoting and furthering translational scientific research to advance treatments for severe and life-limiting genetic disorders such as Cockayne syndrome. We aim to identify and facilitate projects to improve the lives of patients suffering from genetic conditions lacking approved therapies.
2021
87-1188456
$1.72 million
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Riaan Research Initiative seeks to advance gene therapy for Cockayne syndrome.
Families share their emotional journeys and aspirations related to Cockayne syndrome.
#Ride4Riaan raises funds to develop treatments for Cockayne syndrome.
2023-10-15
Cyclist Winty Singh rode 200 miles for #Ride4Riaan to raise funds for Cockayne syndrome research.
2024-10-12
Join us as Winty Singh rides 200 miles to support research for Cockayne syndrome.
Learn MoreResearch focused on developing therapies aimed at repairing genetic mutations causing Cockayne syndrome.
Learn MoreOverall Score
55
64
/100
Program Expense Ratio
92.33%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.005815
20
/20
Working Capital Ratio
7.796
20
/20
Fundraising Efficiency
0
2
/20
Fiscal Year:2022
Source:Source: Self-reported by organization
Category | Amount | Percentage |
---|---|---|
Contributions, Gifts, and Grants | 787.2K | 99.87% |
Program Services | 0 | 0.00% |
Investment Income | 989 | 0.13% |
Sales of Non-Inventory Assets | 0 | 0.00% |
Other Notable Sources | 0 | 0.00% |
Total Revenue | 788.1K | 100.00% |
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