Mission
Riaan Research Initiative is dedicated to promoting and furthering translational scientific research to advance treatments for severe and life-limiting genetic disorders such as Cockayne syndrome. We aim to identify and facilitate projects to improve the lives of patients suffering from genetic conditions lacking approved therapies.
Basic Information
Founded in
2021
EIN
87-1188456
Total Assets
$1.72 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance

Mission to Cure Cockayne Syndrome
Riaan Research Initiative seeks to advance gene therapy for Cockayne syndrome.

Our Community's Stories
Families share their emotional journeys and aspirations related to Cockayne syndrome.

Join #Ride4Riaan
#Ride4Riaan raises funds to develop treatments for Cockayne syndrome.
Past Events
#Ride4Riaan 2023
2023-10-15
Cyclist Winty Singh rode 200 miles for #Ride4Riaan to raise funds for Cockayne syndrome research.
Upcoming Events
#Ride4Riaan 2024
2024-10-12
Join us as Winty Singh rides 200 miles to support research for Cockayne syndrome.
Learn MoreOur Programs
Gene Replacement Therapy Research
Research focused on developing therapies aimed at repairing genetic mutations causing Cockayne syndrome.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
55
64
/100
Program Expense Ratio
92.33%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.005815
20
/20
Working Capital Ratio
7.796
20
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
Category | Amount | Percentage |
---|---|---|
Contributions, Gifts, and Grants | 787.2K | 99.87% |
Program Services | 0 | 0.00% |
Investment Income | 989 | 0.13% |
Sales of Non-Inventory Assets | 0 | 0.00% |
Other Notable Sources | 0 | 0.00% |
Total Revenue | 788.1K | 100.00% |
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