Mission
CureSHANK is a research advocacy organization focused on expediting life-changing therapies for Phelan-McDermid syndrome (PMS), a neurodevelopmental disorder caused by changes to the SHANK3 gene. We aim to bridge the gap between basic science and clinical trials through funding targeted research and organizing scientific meetings to connect stakeholders.
Basic Information
Tax-Exempt
Founded in
2019
EIN
84-2240648
Total Assets
$854 thousand
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Showing 2 of 2 goals
At a Glance
Accelerating Life-Transforming Therapies
CureSHANK is dedicated to speeding up the research and development of treatments for those affected by Phelan-McDermid syndrome.
Research Funding
In 2023-2024, CureSHANK has allocated nearly $300,000 towards impactful PMS research grants.
CureSHANK Consortium
This initiative fosters collaboration among various companies focused on SHANK3 therapeutics.
Impact Reports
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
49
44
/100
Program Expense Ratio
88.35%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
3.888
18
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 487.3K | 100.00% |
| Program Services | 0 | 0.00% |
| Investment Income | 3 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 487.3K | 100.00% |
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