Mission
Founded in 2017, the STXBP1 Foundation is a parent-led nonprofit organization focused on advocacy, driving research, and providing families and physicians with crucial information and resources related to STXBP1-Related Disorder. The foundation aims to create awareness, fund research, improve early detection, and advocate for policy changes to support individuals affected by this genetic disorder.
Basic Information
Founded in
2017
EIN
82-1439459
Total Assets
$1.701 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance
Awareness Month
September is recognized as STXBP1 Awareness Month with various events and activities aimed at raising awareness.
Move to Cure Challenge
The 8th annual Move to Cure STXBP1 Disorders fundraiser has a goal to raise $100,000 to support research and advocacy.
STXBP1 Research Collaborations
The foundation collaborates with various researchers and organizations to accelerate the discovery of treatments.
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
58
56
/100
Program Expense Ratio
50.23%
4
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.05875
20
/20
Working Capital Ratio
3.145
16
/20
Fundraising Efficiency
0.8707
14
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 1.831M | 100.00% |
| Program Services | 0 | 0.00% |
| Investment Income | 0 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 1.831M | 100.00% |
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