Mission
Tatton Brown Rahman Syndrome (TBRS) is a rare genetic condition caused by mutations in the DNMT3A gene. The TBRS Community is dedicated to supporting families affected by this syndrome, advancing research, and building a network of connections among patients, families, clinicians, and researchers.
Basic Information
Founded in
2017
EIN
81-2216511
Total Assets
$832.9 thousand
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance
New Family Welcome Packet
An informational resource designed to support newly diagnosed families.
Collaborative Research Network Conference
A conference that brings researchers and clinicians together to discuss TBRS and related research.
TBRS Community Summit
An event that unites the TBRS community for networking and sharing experiences.
Past Events
2022 TBRS Family Conference
October 7, 2022
The 2022 TBRS Community Virtual Family Conference featured talks from prominent clinicians and researchers about TBRS.
TBRS Collaborative Research Network Conference, 2022
September 20, 2022
The TBRS Collaborative Research Network Conference brought together experts to discuss ongoing research related to TBRS.
Upcoming Events
New Family Meet-Ups — Upcoming Dates!
February 28, 2024
Quarterly virtual meet-ups for newly diagnosed and existing TBRS families to connect and share experiences.
Learn More2023 TBRS Community Summit
August 7, 2023
Bringing together the community for the first time since 2011 with a Family Conference.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
46
50
/100
Program Expense Ratio
72.78%
8
/20
Program Revenue Growth
-100.00%
2
/20
Leverage Ratio
0.0104
20
/20
Working Capital Ratio
5.247
18
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 163.6K | 98.93% |
| Program Services | 0 | 0.00% |
| Investment Income | 0 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 1.768K | 1.07% |
| Total Revenue | 165.4K | 100.00% |
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