CDG CARE is dedicated to supporting and empowering families affected by Congenital Disorders of Glycosylation (CDGs). The organization aims to raise awareness of this rare inherited metabolic disorder, provide resources and support for families, and advocate for research and therapies that can improve the lives of those affected.
2014
81-0769799
$598.5 thousand
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
Celebrated each year on May 16th, World CDG Awareness Day promotes global awareness and community support for those affected by CDG.
The 2024 CDG Scientific and Family Conference in San Diego, CA brought together medical professionals and families to advance understanding and support for CDGs.
The CDG CARE Family Support Network connects families to advance research and resources for all affected by CDGs.
A program to connect families and provide joint research and resources for all CDG affected individuals.
Learn MoreDesigned to honor the memory of those who have passed away from CDG and bring support to families.
Learn MoreOverall Score
49
38
/100
Program Expense Ratio
99.05%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
1.509
12
/20
Fundraising Efficiency
0
2
/20
Fiscal Year:2022
Source:Source: Self-reported by organization
Category | Amount | Percentage |
---|---|---|
Contributions, Gifts, and Grants | 715K | 100.00% |
Program Services | 0 | 0.00% |
Investment Income | 29 | 0.00% |
Sales of Non-Inventory Assets | 0 | 0.00% |
Other Notable Sources | 0 | 0.00% |
Total Revenue | 715.1K | 100.00% |