Mission
Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer, 501(c)(3) nonprofit organization helping improve the lives of patients affected by myositis, a group of rare, complicated immune-mediated muscle diseases. MSU provides support options, educational resources, advocacy, and programs that promote awareness and effective treatment strategies.
Basic Information
Founded in
Not Reported
EIN
47-4570748
Total Assets
$111.4 thousand
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance

Empower Walk Event Success
A summary of the successful Myositis Empower Walk event.

Support Options for Patients
Learn about various support options available for myositis patients.

Patient & Caregiver Experience
Join our community for patient-centered support and advocacy.
Impact Stats
Total Funds Raised
Funds Raised during the Myositis Empower Walk
The Myositis Empower Walk successfully raised more than its goal to fund research and support.
Total Amount Distributed
Patient Financial Assistance Program
Launched to provide essential support to myositis patients during difficult financial times.
Number of Patients Matched
Engagement in Clinical Trials
Facilitated the participation of many patients in clinical trials enhancing research collaboration.
Past Events
Myositis Empower Walk 2024
October 19, 2024
Myositis Empower Walk successfully raised $27,359.
First Zoom Support Session
November 1, 2020
First online video support session for patients dated November 1, 2020.
Upcoming Events

Myositis Support Gets Moving on Clubhouse
November 21, 2024
Weekly support for individuals living with Myositis to share experiences and encourage movement.
Learn More
Weekly Sunday Clubhouse Support
November 24, 2024
Support group for patients and caregivers to connect and share experiences.
Learn MoreOur Programs
Myositis Patient Financial Assistance Program
Provides financial help to myositis patients facing emergencies.
Learn MoreVolunteer Opportunities
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
48
40
/100
Program Expense Ratio
76.55%
10
/20
Program Revenue Growth
33.10%
18
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
0.2323
4
/20
Fundraising Efficiency
5.018
6
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
Category | Amount | Percentage |
---|---|---|
Contributions, Gifts, and Grants | 438.2K | 98.66% |
Program Services | 5.79K | 1.30% |
Investment Income | 0 | 0.00% |
Sales of Non-Inventory Assets | 0 | 0.00% |
Other Notable Sources | 176 | 0.04% |
Total Revenue | 444.1K | 100.00% |
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