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    Myositis Support and Understanding Association Logo

    MIP Score

    48

    Med Research
    Medical Research Advocacy

    Myositis Support and Understanding Association

    Myositis Support and Understanding Association Logo

    Myositis Support and Understanding Association

    Med Research
    Medical Research Advocacy
    9125 N Old State Rd, Lincoln, Delaware, 19960View all Lincoln charities
    EIN: 47-4570748
    Total Assets: $111.4 thousand
    Founding year not available

    Mission

    Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer, 501(c)(3) nonprofit organization helping improve the lives of patients affected by myositis, a group of rare, complicated immune-mediated muscle diseases. MSU provides support options, educational resources, advocacy, and programs that promote awareness and effective treatment strategies.

    Read more on their website →

    Basic Information

    Tax-Exempt

    Address

    9125 N Old State Rd, Lincoln, Delaware, 19960

    View all Lincoln charities

    Founded in

    N/A

    EIN

    47-4570748

    Total Assets

    $111.4 thousand

    Mission

    Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer, 501(c)(3) nonprofit organization helping improve the lives of patients affected by myositis, a group of rare, complicated immune-mediated muscle diseases. MSU provides support options, educational resources, advocacy, and programs that promote awareness and effective treatment strategies.

    Basic Information

    Tax-Exempt

    Address

    9125 N Old State Rd, Lincoln, Delaware, 19960

    View all Lincoln charities

    Founded in

    Not Reported

    EIN

    47-4570748

    Total Assets

    $111.4 thousand

    UN Sustainable Development Goals Supported

    This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.

    Showing 3 of 3 goals

    Goal 3

    Good Health

    Goal 10

    Reduced Inequalities

    Goal 17

    Partnerships for the Goals

    Goal 3

    Good Health

    Goal 10

    Reduced Inequalities

    Goal 17

    Partnerships for the Goals

    At a Glance

    Empower Walk Event Success

    Empower Walk Event Success

    A summary of the successful Myositis Empower Walk event.

    Support Options for Patients

    Support Options for Patients

    Learn about various support options available for myositis patients.

    Patient & Caregiver Experience

    Patient & Caregiver Experience

    Join our community for patient-centered support and advocacy.

    Impact Stats

    $27,359

    Total Funds Raised

    Funds Raised during the Myositis Empower Walk

    The Myositis Empower Walk successfully raised more than its goal to fund research and support.

    $250,000

    Total Amount Distributed

    Patient Financial Assistance Program

    Launched to provide essential support to myositis patients during difficult financial times.

    Various

    Number of Patients Matched

    Engagement in Clinical Trials

    Facilitated the participation of many patients in clinical trials enhancing research collaboration.

    Past Events

    Myositis Empower Walk 2024

    October 19, 2024

    Myositis Empower Walk successfully raised $27,359.

    First Zoom Support Session

    November 1, 2020

    First online video support session for patients dated November 1, 2020.

    Upcoming Events

    Myositis Support Gets Moving on Clubhouse

    Myositis Support Gets Moving on Clubhouse

    November 21, 2024

    Weekly support for individuals living with Myositis to share experiences and encourage movement.

    Learn More
    Weekly Sunday Clubhouse Support

    Weekly Sunday Clubhouse Support

    November 24, 2024

    Support group for patients and caregivers to connect and share experiences.

    Learn More

    Our Programs

    Myositis Patient Financial Assistance Program

    Provides financial help to myositis patients facing emergencies.

    Learn More

    Myositis Advocacy

    Empowers myositis patients with a strong voice in policy discussions.

    Learn More

    Volunteer Opportunities

    Volunteer for MSU

    Volunteer for MSU

    Join us to help advocate for and support the Myositis community.

    Learn More

    MIP Score (Beta)

    The MIP Score is in beta! We'd love any feedback you may have.

    The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.

    Overall Score

    48

    40

    /100

    Program Expense Ratio

    76.55%

    10

    /20

    Program Revenue Growth

    33.10%

    18

    /20

    Leverage Ratio

    0

    2

    /20

    Working Capital Ratio

    0.2323

    4

    /20

    Fundraising Efficiency

    5.018

    6

    /20

    Latest Filing Data: Form 990

    Fiscal Year:2022

    Source:Source: Self-reported by organization

    Financial Details

    Revenue

    CategoryAmountPercentage
    Contributions, Gifts, and Grants438.2K98.66%
    Program Services5.79K1.30%
    Investment Income00.00%
    Sales of Non-Inventory Assets00.00%
    Other Notable Sources1760.04%
    Total Revenue444.1K100.00%

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