Myositis Support and Understanding Association Logo

MIP Score

48

Med Research
Medical Research Advocacy

Myositis Support and Understanding Association

Mission

Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer, 501(c)(3) nonprofit organization helping improve the lives of patients affected by myositis, a group of rare, complicated immune-mediated muscle diseases. MSU provides support options, educational resources, advocacy, and programs that promote awareness and effective treatment strategies.

Basic Information

Tax-Exempt

Address

9125 N Old State Rd, Lincoln, Delaware, 19960

View all Lincoln charities

Founded in

Not Reported

EIN

47-4570748

Total Assets

$111.4 thousand

UN Sustainable Development Goals Supported

This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.

At a Glance

Empower Walk Event Success

Empower Walk Event Success

A summary of the successful Myositis Empower Walk event.

Support Options for Patients

Support Options for Patients

Learn about various support options available for myositis patients.

Patient & Caregiver Experience

Patient & Caregiver Experience

Join our community for patient-centered support and advocacy.

Impact Stats

$27,359

Total Funds Raised

Funds Raised during the Myositis Empower Walk

The Myositis Empower Walk successfully raised more than its goal to fund research and support.

$250,000

Total Amount Distributed

Patient Financial Assistance Program

Launched to provide essential support to myositis patients during difficult financial times.

Various

Number of Patients Matched

Engagement in Clinical Trials

Facilitated the participation of many patients in clinical trials enhancing research collaboration.

Past Events

Myositis Empower Walk 2024

October 19, 2024

Myositis Empower Walk successfully raised $27,359.

First Zoom Support Session

November 1, 2020

First online video support session for patients dated November 1, 2020.

Upcoming Events

Myositis Support Gets Moving on Clubhouse

Myositis Support Gets Moving on Clubhouse

November 21, 2024

Weekly support for individuals living with Myositis to share experiences and encourage movement.

Learn More
Weekly Sunday Clubhouse Support

Weekly Sunday Clubhouse Support

November 24, 2024

Support group for patients and caregivers to connect and share experiences.

Learn More

Our Programs

Myositis Patient Financial Assistance Program

Provides financial help to myositis patients facing emergencies.

Learn More

Myositis Advocacy

Empowers myositis patients with a strong voice in policy discussions.

Learn More

Volunteer Opportunities

Volunteer for MSU

Volunteer for MSU

Join us to help advocate for and support the Myositis community.

Learn More

MIP Score (Beta)

The MIP Score is in beta! We'd love any feedback you may have.

The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.

Overall Score

48

40

/100

Program Expense Ratio

76.55%

10

/20

Program Revenue Growth

33.10%

18

/20

Leverage Ratio

0

2

/20

Working Capital Ratio

0.2323

4

/20

Fundraising Efficiency

5.018

6

/20

Latest Filing Data: Form 990

Fiscal Year:2022

Source:Source: Self-reported by organization

Financial Details

Revenue

CategoryAmountPercentage
Contributions, Gifts, and Grants438.2K98.66%
Program Services5.79K1.30%
Investment Income00.00%
Sales of Non-Inventory Assets00.00%
Other Notable Sources1760.04%
Total Revenue444.1K100.00%