Mission
The Myotonic Dystrophy Foundation (MDF) is a global advocate for individuals impacted by myotonic dystrophy. It supports and connects the myotonic dystrophy community, provides resources for care, and accelerates research towards effective treatments and a cure. The organization serves thousands in over 139 countries, focusing on enhancing quality of life and aiding research.
Basic Information
Founded in
2006
EIN
20-5014628
Total Assets
$6.83 million
UN Sustainable Development Goals Supported
This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.
At a Glance
Understanding Myotonic Dystrophy
A new educational series designed to educate individuals living with myotonic dystrophy and their healthcare providers.
2025 MDF Annual Conference
Join us in Indianapolis for the 'DM family reunion', uniting the DM Community to address treatments and cures.
International Myotonic Dystrophy Awareness Day
Raising awareness globally about myotonic dystrophy to help affected families.
Upcoming Events
2024 MDF Gala
2024-05-01
Join us for a gala event to support myotonic dystrophy awareness and fundraising.
Learn More2024 In Motion Awareness Month
2024-07-01
A month dedicated to promoting awareness and encouraging movement.
Learn MoreMeet the DM Drug Developers
2024-08-15
An event where the DM community can meet with drug developers working on DM therapies.
Learn More
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
71
72
/100
Program Expense Ratio
91.06%
20
/20
Program Revenue Growth
186.56%
20
/20
Leverage Ratio
0.2179
14
/20
Working Capital Ratio
2.132
14
/20
Fundraising Efficiency
14.05
4
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 2.775M | 100.02% |
| Program Services | 66.77K | 2.41% |
| Investment Income | 4.672K | 0.17% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 26.25K | 0.95% |
| Total Revenue | 2.774M | 100.00% |
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