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    FRAXA Research Foundation Logo

    MIP Score

    66

    Med Research
    General Medical Research

    FRAXA Research Foundation

    FRAXA Research Foundation Logo

    FRAXA Research Foundation

    Med Research
    General Medical Research
    10 PRINCE PL STE 203, Newburyport, MA, United States 01950-2657View all Newburyport charities
    EIN: 04-3222167
    Total Assets: $3.532 million
    Established in 1994

    Mission

    FRAXA Research Foundation is dedicated to accelerating Fragile X research for effective treatments. They fund research grants and fellowships at top universities worldwide and partner with pharmaceutical companies to bridge the gap between discoveries and treatments. FRAXA’s efforts are likely to benefit people affected by autism, Alzheimer’s, and other brain disorders.

    Read more on their website →

    Basic Information

    Tax-Exempt

    Address

    10 PRINCE PL STE 203, Newburyport, MA, United States 01950-2657

    View all Newburyport charities

    Founded in

    1994

    EIN

    04-3222167

    Total Assets

    $3.532 million

    Mission

    FRAXA Research Foundation is dedicated to accelerating Fragile X research for effective treatments. They fund research grants and fellowships at top universities worldwide and partner with pharmaceutical companies to bridge the gap between discoveries and treatments. FRAXA’s efforts are likely to benefit people affected by autism, Alzheimer’s, and other brain disorders.

    Basic Information

    Tax-Exempt

    Address

    10 PRINCE PL STE 203, Newburyport, MA, United States 01950-2657

    View all Newburyport charities

    Founded in

    1994

    EIN

    04-3222167

    Total Assets

    $3.532 million

    UN Sustainable Development Goals Supported

    This organization contributes to the following United Nations Sustainable Development Goals. See the SDG page for more information.

    Showing 1 of 1 goals

    Goal 3

    Good Health

    Goal 3

    Good Health

    At a Glance

    World Fragile X Day

    World Fragile X Day

    Celebrate World Fragile X Day to honor Fragile X research and support families affected by the syndrome. Landmarks worldwide light up in recognition of Fragile X Awareness.

    BK Channel Openers

    BK Channel Openers

    Discover the promising new BK channel opener, SPG601, poised to enter clinical trials. It aims to restore synaptic function and address core symptoms of Fragile X Syndrome.

    Clinical Trials of Zatolmilast

    Clinical Trials of Zatolmilast

    Tetra Therapeutics’ large scale clinical trials of Zatolmilast aim to treat males with Fragile X. This significant trial is based on FRAXA’s foundational research.

    Impact Stats

    $34.8M

    Direct Investment

    Direct Investment in Fragile X Research

    FRAXA has invested $34.8 million directly into Fragile X research, supporting groundbreaking work aimed at finding effective treatments and a cure.

    641

    Research Grants

    Research Grants Awarded

    FRAXA has awarded 641 research grants to teams actively investigating Fragile X Syndrome, highlighting their commitment to fostering innovative research.

    33

    Programs in Development

    Industry-Wide Pipeline

    FRAXA’s initiatives have led to an industry-wide pipeline of programs in development across many companies, crucial to the mass effort to find new options for people affected by Fragile X.

    Past Events

    World Fragile X Day 2024

    07/22/2024

    Celebrate World Fragile X Day on July 22, 2024 by lighting up landmarks. Join us in honoring Fragile X research and supporting affected families worldwide.

    Tetra Therapeutics Phase 3 Trial

    05/20/2024

    Tetra Therapeutics has launched large-scale clinical trials of their phosphodiesterase (PDE) inhibitor for males aged 9-45 with Fragile X syndrome, based on FRAXA’s foundational research.

    Impact Reports

    PDF Icon

    2022-10 FRAXA Research Foundation Impact Report

    MIP Score (Beta)

    The MIP Score is in beta! We'd love any feedback you may have.

    The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.

    Overall Score

    66

    64

    /100

    Program Expense Ratio

    93.40%

    20

    /20

    Program Revenue Growth

    0.00%

    2

    /20

    Leverage Ratio

    0.002644

    20

    /20

    Working Capital Ratio

    1.856

    14

    /20

    Fundraising Efficiency

    3.104

    8

    /20

    Latest Filing Data: Form 990

    Fiscal Year:2022

    Source:Source: Self-reported by organization

    Financial Details

    Revenue

    CategoryAmountPercentage
    Contributions, Gifts, and Grants1.695M84.01%
    Program Services00.00%
    Investment Income42.01K2.08%
    Sales of Non-Inventory Assets229.8K11.39%
    Other Notable Sources00.00%
    Total Revenue2.018M100.00%

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