Mission
The PFIC Network is dedicated to supporting those affected by Progressive Familial Intrahepatic Cholestasis (PFIC), a rare group of genetic disorders causing cholestatic liver disease. It aims to provide education, resources, and direct support to patients and families, while facilitating research on this under-studied condition.
Basic Information
Tax-Exempt
Founded in
2018
EIN
83-1084501
Total Assets
$487.3 thousand
At a Glance
PFIC Network Project IMPACT
A project aimed at enhancing patient-centered outcomes research by 2025.
PFIC Awareness Month
A month dedicated to raising awareness about PFIC and its impact on families.
Patient Registry
Join the PFIC Network Patient Registry to help advance research and treatment options.
Upcoming Events
PFIC Awareness Month
2024-10-01
Raising awareness about PFIC throughout the month of October.
Learn MorePFIC Kids Club Meeting-November 2024
2024-11-02
Join us for a virtual gathering of teens and tweens with PFIC or BRIC.
Learn MoreOur Programs
Patient Registry
Collects patient-reported outcomes related to PFIC to enhance research and awareness.
Learn MoreProject IMPACT
Aiming to merge patient and clinician treatment information for better outcomes.
Learn MoreSupport Programs
Providing free care packages, financial assistance, and mental health support to families affected by PFIC.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
55
40
/100
Program Expense Ratio
70.87%
8
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.1043
18
/20
Working Capital Ratio
0.8281
10
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 266.1K | 98.19% |
| Program Services | 0 | 0.00% |
| Investment Income | 0 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 271K | 100.00% |
Related Nonprofits
California Nurse-Midwives Foundation
Health Associations
Health Advocacy AllianceProgressive Familial Intrahepatic Cholestasis Advocacy and Resource
Health Associations
Health Advocacy AllianceEmpowering Epilepsy
Health Associations
Health Advocacy AllianceActivating Change Inc.
Health Associations
Health Advocacy AllianceUnited Msd Foundation
Health Associations
Health Advocacy Alliance