Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Logo

MIP Score

55

Health Associations
Health Advocacy Alliance

Progressive Familial Intrahepatic Cholestasis Advocacy and Resource

Mission

The PFIC Network is dedicated to supporting those affected by Progressive Familial Intrahepatic Cholestasis (PFIC), a rare group of genetic disorders causing cholestatic liver disease. It aims to provide education, resources, and direct support to patients and families, while facilitating research on this under-studied condition.

Basic Information

Tax-Exempt

Address

295 Forge Mill Rd, Clay City, Kentucky, 40312

View all Clay City charities

Founded in

2018

EIN

83-1084501

Total Assets

$487.3 thousand

At a Glance

PFIC Network Project IMPACT

PFIC Network Project IMPACT

A project aimed at enhancing patient-centered outcomes research by 2025.

PFIC Awareness Month

PFIC Awareness Month

A month dedicated to raising awareness about PFIC and its impact on families.

Patient Registry

Patient Registry

Join the PFIC Network Patient Registry to help advance research and treatment options.

Upcoming Events

PFIC Awareness Month

2024-10-01

Raising awareness about PFIC throughout the month of October.

Learn More

PFIC Kids Club Meeting-November 2024

2024-11-02

Join us for a virtual gathering of teens and tweens with PFIC or BRIC.

Learn More

Our Programs

Patient Registry

Collects patient-reported outcomes related to PFIC to enhance research and awareness.

Learn More

Project IMPACT

Aiming to merge patient and clinician treatment information for better outcomes.

Learn More

Support Programs

Providing free care packages, financial assistance, and mental health support to families affected by PFIC.

Learn More

MIP Score (Beta)

The MIP Score is in beta! We'd love any feedback you may have.

The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.

Overall Score

55

40

/100

Program Expense Ratio

70.87%

8

/20

Program Revenue Growth

0.00%

2

/20

Leverage Ratio

0.1043

18

/20

Working Capital Ratio

0.8281

10

/20

Fundraising Efficiency

0

2

/20

Latest Filing Data: Form 990

Fiscal Year:2022

Source:Source: Self-reported by organization

Financial Details

Revenue

CategoryAmountPercentage
Contributions, Gifts, and Grants266.1K98.19%
Program Services00.00%
Investment Income00.00%
Sales of Non-Inventory Assets00.00%
Other Notable Sources00.00%
Total Revenue271K100.00%