Mission
The MED13L Foundation serves families impacted by MED13L Syndrome, a rare genetic neurodevelopmental disorder. The foundation focuses on spreading awareness, supporting families, and promoting research aimed at discovering effective treatments and ultimately a cure for this condition. Founded by affected families and medical professionals, the organization embodies a community-driven approach to enhance understanding and medical care for those living with MED13L syndrome.
Basic Information
Tax-Exempt
Founded in
2017
EIN
82-2469441
Total Assets
$332.1 thousand
At a Glance
Join Us for Giving Tuesday
Participate in our annual Giving Tuesday campaign to help advance research for MED13L syndrome.
Road Full of Promise Fundraiser in Chicago
An inspiring fundraising event to support research for MED13L syndrome.
Midwest MED13L Family Meetup
A gathering for MED13L families to connect and share experiences.
Upcoming Events
Giving Tuesday
December 3, 2024
This event invites you to make a difference for our rare MED13L warriors.
Learn MoreAES Annual Meeting
December 6, 2024
A meeting that brings together advocates and professionals focused on better outcomes for people with epilepsy.
Learn MoreRoad Full of Promise MED13L Fundraiser – Chicago
January 25, 2025
An evening of music and community supporting the MED13L Foundation.
Learn MoreMidwest MED13L Family Meetup
March 8, 2025
Join our community at Component Brewery for a special gathering.
Learn More2025 Research & Family Meetup
July 10-12, 2025
A meet-up focused on latest developments and support within the MED13L community.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
45
42
/100
Program Expense Ratio
84.64%
16
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
7.981
20
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 323.9K | 100.00% |
| Program Services | 0 | 0.00% |
| Investment Income | 0 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 323.9K | 100.00% |
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