Mission
The Benign Essential Blepharospasm Research Foundation (BEBRF) is dedicated to undertaking research, promoting education, and providing support for individuals diagnosed with benign essential blepharospasm and related facial dystonias. It is the only organization solely focused on these conditions and operates as a volunteer non-profit, reliant on donations for funding.
Basic Information
Founded in
1981
EIN
74-2193322
Total Assets
$1.833 million
At a Glance
NORTHEAST TEXAS Live! Support Group Meeting
Join us at our Live support group meeting in Northeast Texas for shared support and information.
National Zoom! Support Group Meeting
Participate in our National support group meeting via Zoom to connect with others.
BEBRF Annual Symposium
An annual event gathering patients and medical professionals to discuss updated research and treatments for blepharospasm.
Impact Stats
Total Research Funding
Research Grants Awarded
BEBRF has awarded almost $3 million in research grants since its inception.
Annual Support Group Meetings
Support Group Meetings
BEBRF volunteers hold over fifty support group meetings per year.
Annual Symposium Attendees
Annual Symposium Attendance
Over 100 people attend the BEBRF Symposium annually, which includes international participation.
Upcoming Events
NORTHEAST TEXAS Live! Support Group Meeting
2024-12-10
Gathering for local support and shared experiences.
Learn MoreGREATER LOS ANGELES Live! Support Group Meeting
2024-12-14
Meet others in the Los Angeles area for support and information.
Learn MoreNATIONAL Zoom! Support Group Meeting
2024-12-17
Virtual gathering open to all participants for shared support.
Learn MoreVolunteer Opportunities
Get involved in a Clinical Trial
Participate in clinical trials for research towards blepharospasm.
Learn MoreMIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
56
50
/100
Program Expense Ratio
66.80%
6
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0.0009604
20
/20
Working Capital Ratio
8.188
20
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 337.3K | 91.06% |
| Program Services | 0 | 0.00% |
| Investment Income | 33.11K | 8.94% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 370.4K | 100.00% |
