Mission
Cure LBSL is a registered non-profit organization dedicated to raising awareness and funds for research into LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; most often developing in children, affecting their ability to walk, then even to stand and coordinate fine and gross motor skills. The organization connects families, advocates for research, and provides resources for those affected by this condition.
Basic Information
Tax-Exempt
Founded in
2013
EIN
46-2829156
Total Assets
$535.1 thousand
At a Glance
LBSL Awareness Day
Join our annual event to raise awareness and funds for LBSL.
Resources for Patients
Offering information and support for patients and families impacted by LBSL.
Research Initiatives
Funding and advocating for crucial research into LBSL.
Impact Stats
$3.5 million
Total Funds Raised
Raised Over $3.5 million for Research
Significant funding gathered for research efforts
Rare Impact Award 2017
Award
2017 Rare Impact Award Winner
Recognition for outstanding contributions to rare disease advocacy
First-Ever
Convention
Host First-Ever International LBSL Patient Conference
First global event gathering patients and families affected by LBSL
Six Continents
Global Network
Created Network of Families and Scientists Across Six Continents
Established a global support network connecting affected families and researchers
Impact Reports
MIP Score (Beta)
The MIP Score is in beta! We'd love any feedback you may have.
The MIP Score and it's methodology is purely used as a way to visualize how a nonprofits public financial data compares against others. It doesn't reflect the unique circumstances and impact that a nonprofit has.The MIP Score should never be used to say one charity is better than another.
Overall Score
47
32
/100
Program Expense Ratio
94.95%
20
/20
Program Revenue Growth
0.00%
2
/20
Leverage Ratio
0
2
/20
Working Capital Ratio
0.4054
6
/20
Fundraising Efficiency
0
2
/20
Latest Filing Data: Form 990
Fiscal Year:2022
Source:Source: Self-reported by organization
Financial Details
Revenue
| Category | Amount | Percentage |
|---|---|---|
| Contributions, Gifts, and Grants | 1.41M | 100.00% |
| Program Services | 0 | 0.00% |
| Investment Income | 1 | 0.00% |
| Sales of Non-Inventory Assets | 0 | 0.00% |
| Other Notable Sources | 0 | 0.00% |
| Total Revenue | 1.41M | 100.00% |
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